Hutchinson-Gilford progeria syndrome, or Benjamin Button disease, as it is popularly known, is considered one of the rarest diseases in the world. This syndrome, which is similar to the situation in the movie “The Curious Case of Benjamin Button”, causes the skin to look older than it is. This rare disease, in which patients live on average until the age of 13, is found in only 500 children worldwide.
One of the people who had this disease, also known as premature aging, was the famous YouTuber Adalia Rose. However, a sad statement was made from Rose’s family. 15-year-old Rose, who lives in the United States and has 2.9 million subscribers, died on January 12, according to the statements made.
“He left a great mark on the lives of millions of people”
Rose’s family, who lives in the state of Texas, said in a statement, “He came quietly and left quietly. But his life was much more than that. Adalia touched millions of people and left a great mark on them. She is no longer in pain and dances to the music she loves. We wish this didn’t happen, but unfortunately that’s how it is. We want to thank everyone who loved and supported him. We would also like to thank all the doctors and nurses who tried to keep him alive in a healthy way” and shared the news of the death of the famous YouTuber with his fans.
Diagnosed when she was three months old, Rose shared about her colorful life, as well as how it was to live with her illness, on her YouTube channel. Millions of people around the world were also following his content with love. Rose’s mother also stated in the statements she made in the past years that Adalia had changed her life, and it was a wonderful feeling to watch her grow up and see how different she was from everyone else.
The death of Rose, whose content can be found here, was also on the agenda on social media. Hundreds of people from around the world expressed their sadness about the death of the 15-year-old teenager, thanked him for the beauty he brought to their lives and expressed their condolences to his family.
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